Lyme disease in B.C.: more needs to be done

Lyme disease in B.C.: more needs to be done.

At least the government in British Columbia finally gets it.

They now admit that Chronic Lyme disease is real and that Lyme disease is the fastest growing infectious disease in North America.

If only our own government in the US would do the same. There are countless victims here suffering the effects of Chronic Lyme and the associated co-infections. Many of them have no way to pay for costly treatments and continue to get worse while insurance companies refuse to pay.

Most people don’t have a clue about the dangers associated with this terrible disease. Most people don’t realize that it can, and has been, deadly.

More has to be done to educate the public, and most general practitioners, as to the dangers. More has to be done to make our own government see what British Columbia has finally admitted. This threat is real. Citizens of our country are suffering and something must be done.

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Why do people do this?

Have you ever asked yourself why some people choose to do such selfish things?

A couple of examples from my own past help me remember how it feels to be on the receiving end of someone’s extreme selfishness. Many years ago, I was laid-off from a great job two weeks before Christmas. My children were still small ones at the time. Needless to say, Santa was less than generous that year. Fast-forward a couple of decades. My husband told me on my birthday that he didn’t want to be married anymore. Within a week he moved out.

Unfortunately, my youngest son Cole now knows exactly how it feels to find yourself without a job for the holidays. Today he was let go from his sales job just 22 days before Christmas. With a 2-year-old son of his own, he has to feel some of the same anxiety that I felt so many years ago. Luckily, he has already found a position where he can start part-time in a week or two. This new position will mean a pay cut, and he will still be without income for a time…at Christmas time.

After he called to tell me that he had been let go, I started to think about how selfish one has to be to steal the joy from someone at the worst time possible. What kind of unfeeling, heartless individual can cut the legs from underneath a mother, wife, father…  Despite careful consideration on the subject, I can think of no justification for such actions. I don’t have an answer to any of these questions, and I may never know. Any thoughts?

Christmas Music

Every year I look forward to the holidays. I get to spend more time with family because, even though I am no longer busy multi-tasking, they are still very busy. Last year I was in such a terrible physical condition I barely knew that the holidays existed, so this year I am very grateful to feel better and be more aware. A very big part of my holiday experience is the music that brings the season alive.

Having a small fixed income has robbed me of the joy of gift giving almost making me feel separate and apart from Christmas this year. Therefore, I have not as yet tuned in to the stations playing Christmas music nor have I played any Christmas CD’s…until today.

This week I have slowly come to remember that Christmas is about so much more than gift giving or receiving. It is about love. It is about celebrating the most precious gift of all. I understand that my family considers my gift to be my presence for another Christmas. Their gifts to me are presence, love, support and faith. This understanding brings the spirit of Christmas back to me. Therefore, today I begin to blast the Christmas music again.

“Do you see what I see?”

Lyme Disease Symptoms, Treatment, Vaccine, Diagnosis and Prevention by MedicineNet.com

Lyme Disease Symptoms, Treatment, Vaccine, Diagnosis and Prevention by MedicineNet.com.

Web Pages Telling the Personal Stories of Lyme Sufferers

http://www.helpelizabeth.net/index.html
http://lymedizzez.tripod.com/MyStory.html
http://www.canlyme.com/lauren.html
http://www.angelfire.com/ny/lymedisease/index.html
http://www.ilads.org/lyme_research/lyme_publications22.html
http://www.healthdiaries.com/lymedisease/lymenade/

I Don’t Get It

Because of my illness, I am disabled by the standard of the Social Security Administration. I draw a stipend every month that is based on a life’s work while paying into Social Security. This I get and am great-full to have.

What I don’t get is the medicaid system. Because I am disabled, I draw a small fixed income. However, my doctor visits, lab work, testing and prescriptions cause me to run out of money for food and medicine. If the medicaid system was thinking logically, there protocol would include an allowance for medical bills when considering whether or not an applicant qualifies.

Instead of just looking at my income as the only measure… the only criteria for deciding whether or not I qualify, doesn’t it make more sense to consider the applicants’ medical expenses? If they tell you that you can’t qualify because the amount you draw is $88. more than the limit dictates, it is ridiculous. If they consider what I draw then subtract what I pay out monthly in medical expenses, it would become clear to them that I live below the poverty level.

I can’t be the only one.  Are you out there? Is there someone else like me who “draws too much” to get help from medicaid? Let me see your comments…read your stories. Sometimes a change can start with one voice.

So sleepy…

The last three days, I have spent more time asleep than awake. It is a condition of my disease and something that I really can’t help. Even now, I am so sleepy that I am not sure whether or not I will finish my thoughts.

I have found that, when you sleep a great many hours clumped together like that, it takes a while to realize what is real and what is not when you awake. I am confused about reality, I am confused about what I have and have not done, and I am anxious because I fear that something important has gone undone because I was asleep.

I am sure my body needs the rest because the disease is so fatiguing. The pain that I feel with every movement is exhausting. However, I still feel guilty when I realize that 72 hours has gone by and I slept through most of it.

It starts with a tired feeling that quickly grows to sleepiness. Then my eyelids get harder and harder to keep open. After a bit, I allow myself to close them for just a minute and suddenly I feel like I am being pulled deep down inside myself. From there, it is a battle of wills until finally I can fight no more. The next thing I know it is hours later. I get up for just a bit, and the whole thing starts all over again…